Charlie Gard who turns 1 year old on August 3, 2017, was born with encephalomyopathic mitochondrial DNA depletion syndrome. Despite the fact that he is unable to move or even breathe on his own, this child who is blind and deaf has ended up at the center of a global political debate.
Courts Rule to Remove Lifesaving Medical Care
Ever since, Charlie was born, he has been hospitalized. Three courts in Europe and the European Court of Human Rights have denied his parent’s permission to bring the child to the United States where lifesaving treatment may be available. They feel that they have the right to give their child a chance to live, but the courts have determined that the hospital has the right to turn off the breathing machine. The courts have ruled that Charlie must stay in the London hospital where he is currently a patient.
Pope Francis Supports Parents
According to the Vatican, Pope Francis has been following the case with sadness and affection. Officials at the Vatican say that the pope hopes that the child can be brought to the United States as the parents’ wish. Italy’s top pediatric hospital has said that they will take the sick infant giving him a chance to continue to live. While there are only 16 children in the world believed to have this debilitating syndrome, some experts believe that nucleoside therapy could help save the infant’s life. In light of the new evidence that this therapy might help, the London hospital will return to the High Court on July 10, 2017.
Help From United States
President Trump recently tweeted that the United States was prepared to do everything possible to help this family. An online campaign has raised more than $1.7 million in hopes that the child can be brought to the United States. Members of the United States Congress have proposed that the family could receive permanent residency if it would save the child’s life. The United States has also said that they are willing to ship the medicine to London if Charlie is unable to travel.